Our Daughter, Haven Eileen Kiley, came into this world and left all too quickly. She passed away from a rare genetic disease called Citrullinemia. Citrullinemia is an autosomal recessive urea cycle disorder that causes ammonia and other toxic substances to accumulate in the blood. Her five days of life was filled with happiness, Love and sadness. Some of her time she was cared for by the Pediatric Intensive Care Unit at Hemby Childrens hospital in Charlotte. While the outcome wasn’t what we hoped for, these people work tirelessly around the clock helping our children truly performing God’s work.
Our mission is to raise money, volunteer to directly help children, families, and the facilities that care for them in our community and beyond.
The Haven Kiley Foundation is a registered 501c3 nonprofit organization. All contributions to the foundation are tax deductible.